Boy with rare terminal illness stuns with creative Harry Potter costume


A boy with a rare terminal disease is turning heads with his incredible collection of Halloween costumes — including an elaborate Harry Potter get-up.

Sam Buck was diagnosed with vanishing white matter (VWM) disease in 2013, when he was just 2 years old. There is no known cure for the rare, terminal illness, which typically presents in early childhood and often causes seizures, a loss of motor function and even blindness.

But that hasn't stopped Sam's family from helping him live his life to the fullest.

"We decided very early on to give Sam the best life we could, filled with love, joy and experiences," Allyson Buck, Sam's mom, posted in TODAY's parenting forum this month. "Despite all his disabilities, Sam is joy personified."

The mother shared that her son's condition has kept him bound to a wheelchair for each of the past five Halloweens, a fact that has clearly not stopped the family from going all out with his costumes.

Buck shared multiple photos of Sam's outfits from over the years, including a heartwarming Harry Potter getup that seemed to make its debut in 2017. Sam's "Harry" costume includes the wizard's trademark wand, robes and lightning bolt scar, but it also features another, highly creative addition.

A consistent feature of Sam's outfits is how his family manages to incorporate his wheelchair into each theme. In this case, he's seen riding a fully mobile "dragon."

RELATED: See more of Sam's amazing Halloween costumes

"Sam has been wheelchair-bound for the last 5 Halloweens, so we always try to make his wheelchair part of his costume, and make sure that it is the coolest costume around," Buck said in her TODAY post.

It's unclear what Sam will be going as this year, but based on social media — the family runs a Facebook, Instagram and Twitter account documenting their son's journey, in addition to a "Sam vs. VWM" blog —it's probably going to be photo-worthy.

In the past, Sam has dressed up as a racecar, a knight and Elvis Presley, just to name a few. It's a tradition that Buck said has been a huge help for her son.

"It is something that brings him [and us] so much joy and is the one day of the year it is better to be in a wheelchair than not," Buck's post read. "It is the one time of the year other kids look at him with envy, not pity, and that is priceless."