What do you get when Broadway's biggest stars, such as Javier Muñoz and Gideon Glick, come together in the recording studio? One heck of a song. And one heck of a message.
Joined by Broadway veterans Laura Osnes, Christy Altomare and actress Sarah Levy, Muñoz and Glick have banded together for a new campaign -- called the "Anyway" campaign -- for an original song to help raise money for Emily's Entourage.
At the center of the Entourage is Emily Kramer-Golinkoff: a 33-year-old daughter, sister and granddaughter who was diagnosed with Cystic Fibrosis when she was just a few weeks old. Her parents, Liza and Michael, have done everything in their power to raise Emily as if she was a normal child.
As the fatal disease only affects 70,000 people worldwide, funding for a cure is limited. Emily and her family are even more restrained by her specific mutation, which means medical funding is even rarer. And with a life expectancy of only 35-37 years for her kind of CF, time's ticking.
They've also built a network of family, friends, and strangers from around the world, all of whom have been welcomed into the Entourage. Each Entourage member has been more inspired by Emily's story than the next.
Take Elizabeth Phillipson-Weiner, from Emily's hometown of Philadelphia, Pennsylvania and composer of "Anyway." She took a simple journal entry from a songwriting retreat, turning lyrics like "when the going gets tough I ask questions" into a prolific melody.
Elizabeth explained to AOL Lifestyle. "The song wasn’t just cathartic for me, but could actually ring true for a lot of other people. I immediately thought of Emily." Working with co-writers, producers and engineers, that melody was soon turned into a demo.
But as inspired as Elizabeth was by Emily's story, the Entourage required "star power" to bring this project alive.
"I cold contacted agents and managers, I asked friends and friends of friends and friends of friends of friends," said Elizabeth. "We did hear 'no' quite a bit, but whenever I became discouraged or frustrated I thought about who and what I was doing this for."
RELATED: Emily's Entourage on Instagram
Woman with cystic fibrosis campaigns for own cure
Woman with cystic fibrosis campaigns for own cure
Flu shot ✔️ One cold or flu is all it takes to trigger a life threatening lung infection for people like Emily. So you can imagine how scary flu season is for people like her! That's why, when September rolls around each year, Emily beelines to the pharmacy to be first in line for the flu shot.
When it comes to protecting your heath and the people around you, there are many things in life that are out of our control. But boosting your immunity against the flu is one thing we CAN do.
So this flu season, we here at EE encourage you to get yourself to your nearest flu shot clinic STAT! Do it not only to protect yourself from the nasty flu, but to protect the vulnerable folks around you, like infants, pregnant women, elderly and those with compromised immune systems -- people like Emily.
One little prick for you, one major step towards herd immunity and better health for everyone around you!
#fluselfie #flushotselfie #flushot #herdimmunity #curecf #cfawareness #cfaware #cysticfibrosis #emilysentourage #breethe #EEfluselfie
Today, Emily spoke on a panel about accelerating progress in rare disease treatment at the Cambridge Rare Disease Summit! Ok, we must admit that the hogwarts-like environment and British ah-ccents didn't hurt, but truly, it was such a thrill to participate on such a distinguished panel at this outstanding event and connect with the spectacular international rare disease community. Huge thank you to the Cambridge Rare Disease Network for this amazing opportunity!! #raredisease #crdn2016 #emilysentourage #breethe #cfawareness #cfaware #curecf #careaboutrare
Oh, just heading to Pittsburgh to casually join President @barackobama who will be hosting the @whitehouse Frontiers Conference on science, technology, and innovation tomorrow. UM WHAT?! Honored doesn't begin to capture how we feel to represent Emily's Entourage and our trailblazing efforts to accelerate precision medicine and build a disruptive model for fast breakthroughs among this distinguished group of innovators and rockstars!
President Obama, here we come!!! #curecf #cfawareness #cfaware #cysticfibrosis #precisionmedicine #EEbreakingthrough #emilysentourage #breethe #FutureofHealth #WHFrontiers
In #philly tonight? Head to @citytaplogan from 6-9 for the most inspiring happy hour to kick of our Emily's Entourage Champion campaign! Drink specials and appetizers all night long🍻 plus of course an appearance by our very own Emily! Let's celebrate getting a little closer to curing CF every day! #celebrate #cheers #careaboutrare #phillylife #phillyeats #centercityphilly #citytaphouse #inspiration #youngprofessionals #CFawareness #cysticfibrosis #cureCF #emilysentourage #EEchampions #brEEThe
Exciting news: we have a request for proposals (RFP) out via the Perelman School of Medicine at the @pennmedicine Disease Center! That means we've raised the funds to create a grant for an academic researcher to study Emily's specific nonsense mutation. This is at the heart of what EE is about -- driving research and creating space for limitless possibilities. Seeing the words "this grant is made possible by the Emily’s Entourage organization" on an RFP -- that's something to celebrate! 🎊💐🎉 #cureCF #cantstopwontstop #disruptors #research #science #knowledgeispower #cysticfibrosis #breethe #emilysentourage #raredisease #rarediseaseawareness #orphandisease @mdbride4rare
CALLING ALL RUNNERS!
We invite you race the streets of the city of brotherly love during the annual Philadelphia Marathon (November 19-20th). Last year's team raised an incredible $20,000 -- imagine what we can do this year?! Emily’s Entourage covers the cost of registration for all runners who commit to raising funds for EE. Want more details? Email Angela at email@example.com. Let's go Team EE!
#phillymarathon #teamEE #run215 #runhappy #marathon #halfmarathon #emilysentourage #cureCF
Just two Ems casually chatting with lights blaring and cameras rolling. All for the 2017 campaign video debuting at the annual gala in Dec 3💡🎥 🎬
#savethedate #curecf #cfawareness #cfaware #cysticfibrosis #emilysentourage #videoshoot #breethe
Our allstar EEers @faskefoods @jake_kyle trekking to the top of the world in pursuit of magic to #CureCF!!! 🌄✨✨✨ you guys rock!!!! #cfawareness #cfaware #cysticfibrosis #emilysentourage #breethe #eearoundtheworld #eetravelstheworld #whereintheworldisee
CF can't stop Em from biking her way around Amsterdam 🚲
#curecf #eetravelstheworld #eearoundtheworld #whereintheworldisee #emilysentourage #breethe #amsterdam
A HUGE THANK YOU: Cousins Who Care -- a local group of cousins who train, eat pasta, and race together to benefit causes they care about -- selected Emily's Entourage as their cause for their sixth Broad Street Run... and trekked through the rain and wind to raise $2,789 for #CF research!!! <3 <3 <3 We are beyond thankful and grateful to be supported by such a dedicated, selfless family! #familymatters #broadstreetrun #teamEE #emilysentourage #cfawarenessmonth
These are (just some of) the ladies that raced #TeamEE to the finish line at the crack of dawn this morning in @pennmedicine's @mdbride4rare!!! Talk about love and commitment!!! These superheroes are the epitome! 🚴🏼🚴🏼🚴🏼🏆🏆🏆 #curecf #cfawareness #cfaware #cysticfibrosis #breethe #emilysentourage #cfawarenessmonth #raredisease
On 🔝 of the 🌎
#cureCF #cysticfibrosis #breethe #CFAware #CFAwareness #whereintheworldisee #eearoundtheworld
Photo and caption credit: @hannahrkramer 😘
Em doing her thing vesting and nebbing after a long day of event planning in Brooklyn #CysticFibrosis #curecf #CFAwareness #CFAware #Breethe #EmilysEntourage
We are on @cnn!!!!! This is totally surreal!!!!!
Huge thank you to the amazingly committed and talented folks at CNN for making this happen and creating such an exceptional piece! We are SO grateful!!!
>>>link in profile
#cureCF #cysticfibrosis #CFAware #breethe #CFAwareness #cnn
Our inaugural EENY fundraising total is in.... and it MIND BLOWING! Ready for this?! $110,000!!!!!!!!!!!!!!!!
YOU GUYS!!!! Our hearts our exploding and we are blown away. We are eternally grateful for YOU, our Entourage, for fueling this most EPIC takeoff. We are inspired, motivated, energized and READY TO DO THIS. We can't stop here. We are taking off. Let's CURE this thing!!! DONATE. PASS IT ON. MAKE A DIFFERENCE.
#eetakingoff #curecf #cfawareness #cysticfibrosis #breethe #cfaware #EENY #emilysentourage #makeadifference #wecandothis
Discover More Like This
BACK TO SLIDE
"We ended up with 5 of the most amazing stars that the stage and screen has to offer and they were all not only moved by Emily’s Story, but came with stories of their own. We knew immediately, they’d be Entourage members for life."
One incredible recording and music video later, Elizabeth hopes her project is emblematic of the message Emily's Entourage sends. "Emily always talks about her belief in the power of people. That is definitely at the core of this campaign," she said.
Credit: Elizabeth Phillipson-Weiner
"If I could, I would make it so that everyone on earth knows Emily’s story. Everyone would hear about her perseverance in the face of an insurmountable challenge; how she decided to take control of an uncontrollable situation just by asking questions; how she created a movement using only her voice," Elizabeth concluded.
Emily's Entourage is asking for $9 donations in order to shine a light on Cystic Fibrosis and other rare diseases with #GIVE9toSHINE. You can learn more about Emily's Entourage here.