Meet Sara Geurts, the 26-year-old woman with a rare skin condition who’s killing the modeling game

Around the age of 10, Sara Geurts started to notice how her stretchy skin didn't look like anyone else's. At first, she wasn't insecure about it, because, as she told Mic in an interview, she considered it to be "so cool because no other kid could do the things that I could with my skin and joints."

Soon, Geurts would be diagnosed with Ehlers-Danlos syndrome, a connective tissue disorder that can affect the way collagen is processed. Collagen helps maintain the structure of the human body, in the skin, joints and also in the tissues that support internal organs.

As a result, Geurts' skin hangs loose.

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11 PHOTOS
Sara Geurts redefines beauty
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Sara Geurts redefines beauty
🌞🌞🌞 • • • • • • • • • #weekend #saturday #selfie #sunshine #rays #makeup #sorrynotsorry #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #mybeautymyway #loveyourbody #loveyourlines #selflove #rare #real #bodylove #nowrongway #beyou #bebeautiful #beauty #blessed #inspire #embrace #happy #vibes #model #WLYG
Wedding timeee 😊 • • • • • • • • #weekend #saturday #selfie #sorrynotsorry #makeup #onpoint #wedding #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #mybeautymyway #loveyourbody #loveyourlines #selflove #nowrongway #beyou #bebeautiful #blessed #embrace #beauty #inspire #real #model #WLYG
"Your going to meet people who are intimidated by you. You're different. People don't know how to react or how to accept someone who doesn't follow the crowd... They are not used to somone who doesn't try to fit in -- So instead of bolstering your uniqueness, they'll try and make you feel like you're weird or damaged. I'm here to offer some well earned advice : Screw them." 💕 • • • • • • • • #week #thursday #tbt #throwback #latergram #instaphoto #sorrynotsorry #victoriassecret #qotd #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #mybeautymyway #loveyourbody #loveyourlines #selflove #nowrongway #beyou #bebeautiful #perfectlyimperfect #blessed #inspire #embrace #happy #vibes #model #wlyg #weloveyourgenes
New faces, I see you.. Welcome to my life. 👀👀👀 • • • • • • • • • • • #week #thursday #tbt #throwback #latergram #latepost #hm #lingerie #victoriassecret #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #mybeautymyway #loveyourbody #loveyourlines #selflove #nowrongway #beyou #bebeautiful #blessed #inspire #embrace #happy #beauty #real #model #wlyg #weloveyourgenes
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Rainyyy daaaays call for photoshoots with my new Art-a-Whirl jems. • • • • • • • • • #weekend #sunday #night #rain #photoshoot #photo #jewelry #handcraftedjewelry #chains #stones #jems #americanapparel #aaclassics #nude #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #loveyourbody #loveyourlines #selflove #vibes #mood #blessed #beauty #inspire #beyou #model #wlyg #weloveyourgenes
Saturday vibes 🌞 🌞 🌞 • • • • • • • • #weekend #saturday #morning #errands #brunch #happy #lovinlife #perfectday #sunshine #coffee #breakfast #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #inmyskiniwin #mybeautymyway #loveyourbody #loveyourlines #loveyourself #selflove #beauty #natural #blessed #beyou #nowrongway #model #unsigned #modelscout
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Todays outfit for the Fashion district • • • • • • • #monday #vibes #cali #vaca #losangeles #fashiondistrict #urbanoutfitters #ehlersdanlosawareness #ehlersdanlossyndrome #effyourbeautystandards #effthelabels #inmyskiniwin #mybeautymyway #beautyisnotgeneric #beautycomesfromwithin #loveyourbody #loveyourlines #loveyourself #perfectlyimperfect #embraceit #ihaveembraced #blessed #beyou #bebeautiful #model #unsigned #modelscout #scoutme #willyscouts
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Now 26 years old, Geurts has decided that this disorder isn't going to stop her from living her life to the fullest. She's been modeling and photographing herself since she was 22 or 23 as a way to take a stand against the "perfection" the fashion industry tries to promote.

"I think that the modeling industry is based around the vision of 'perfection' and by putting my 'imperfections' out there, it's almost like a slap in the face to the industry: shock factor, a sense of rebellion," Geurts said. "By going against what the 'norm' is within the industry and getting such positive feedback, it really enforces my vision of myself, the journey I am on, and just being perfectly imperfect."

And isn't that what body positivity is really about? Showing the world that no one person can make the rules for what really is beautiful or not?

Since becoming a bit of an Instagram icon herself (Geurts has over 9,000 followers), she's had to deal with people who don't understand her, for sure, but has also seen a wave of positive feedback from people who can connect to her story.

"There are always going to be those who don't entirely understand what you're doing, or see the vision you have put forth," Geurts said. "But the good always outweighs the bad, and the amount of Ehlers individuals who have offered their insight and support has been what keeps me going."

As for advice to people with Ehlers, or anyone who struggles with their self-image, Geurts put it like this: "Never give up. Know you always have support, and reach out to those when you need. The journey you are on is individual to you, and makes you who are. No one else walks the same journey, or bears the same stripes as you. Wear your stripes with my pride, my love, and know you have a whole herd of support."

Related: Is this the tallest model in the world?

14 PHOTOS
Ekaterina Lisina is the world's tallest model
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Ekaterina Lisina is the world's tallest model
A bit of my favourite process😍with @flashstudiopnz #longlegs #longlegs #tallestmodel #tallmodel #самаявысокаямодель #длинныеноги #самыедлинныеноги #sexylegs #sexymodel #legsofinsta #legsofinstagram #legs #ekaterinalisina #guinessrecords #glamour #supermodel #modelmayhem
I think its time to change few names in Guiness book of records....are you,friends,with me?😚😚😚 Мне кажется пришло время изменить пару имен в Книге Рекордов Гиннеса.....вы со мной,друзья?😚😚😚 #guinessrecords #guiness #guinessbookofrecords #longestlegs #longlegs #worldtallestmodel #tallestmodel #tallmodel #supermodel #verytallgirl #glamour #glamourmodel
This is my face when someone is telling me...."Wow!You are so tall!" 😂😂😂 #самаявысокаямодель #самыедлинныеноги #длинныеноги #модель #гламур #высокаямодель #tallestmodel #worldtallestmodel #longestlegs #longlegs #glamourmodel #glamour #ekaterinalisina #bigsizeshoesmodel #sexylegs #sexyfeet #supermodel #modelmayhem
Доброе утро,СТРАНА! 😚 Полная версия видео(full video version): https://youtu.be/PpJKDGa11Wc #tallestmodel #tallisbetter #tallmodel #missglobal2017 #longestlegs #longlegs #professionalmodel #ekaterinalisina #екатериналисина #glamour #glamourmodel #tv #supermodel #sexylegs
See you soon in @dorogoe58 magazine! Was amazing to work with you! @yurijdrovnin @flashstudiopnz !💋Thank you for make up @nate_mua #worldtallestmodel #tallestmodel #tallmodel #tallisbeautiful #longestlegs #longlegs #tallgirls #supermodel #model #professionalmodel #6foot9 #modelmayhem
Where I am looking at? 🤔😂 I guess to the stars😉💋😎 #206cm #6'9 #tallestmodel #supermodel #professionalmodel #glamourmodel #Milano #tallmodel #tall #supertallgirls #longestlegs #longlegs #size47 #size14 #glamour #model
Beautifil Milano!😍 #longestlegs #longlegs #tallestmodel #professionalmodel #tallmodel #supermodel #tall #tallisbetter #tallisbeautiful #ekaterinalisina
This is what my friends do sometimes to give me a kiss, thank you very much for being my amazing friend @mehdiebrahimivafa_official for so many years! And also for your support!!! 💋🙏🙏🙏 #tallisbeautiful #tallisbetter #tallmodel #tallestmodel #tall #longlegs #longlegs #мехдиэбрагимивафа
2.28cm (7'6) against 158cm+chair🤗👍 #tallmodel #tallgirlsbigfeet #tallestwoman #tall #tallgirls #tallgirlsproblems #heightcomparison #tallisbetter #verylonglegs #longlegs #longestlegs #lovebeingtall
I've found a Cavalli dress for myself long time ago)))
Its a little bit old photo(2013)....times when I was so naive....I still am actually,just a little less maby)))...enjoy)) #portrait #model #tallestmodel #tallmodel #bigsizeshoesmodel #ekaterinalisina
Hoping to get a title not only "The world tallest model" but also "World longest legs" by Guiness book of records...😉😚 #tallestmodel #tallmodel #tallisbeautiful #tallgirlsproblems #tall #longestlegs #longlegs #verytallgirl #supermodel #professionalmodel #model #6'9 #size47 #bigsize #ekaterinalisina #modelmayhem
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