Girl with 'Sleeping Beauty Syndrome' will sleep for months

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This 22-year-old is the modern Sleeping Beauty — but the bizarre disorder is not quite as glamorous as the fairy tale.

Read: Meet the 5-Year-Old Boy Whose Rare Condition Causes Skin to Grow 10 Times Faster Than Normal

Beth Goodier, of Stockport, England, was diagnosed with Kleine-Levin syndrome when she was 16 years old.

Her mom, Janine Goodier, told InsideEdition.com she had just recovered from tonsillitis when she started coming home from class complaining of extreme fatigue and inability to focus.

"She was struggling to stay awake," Goodier said. "That continued for about two weeks. One day, she fell asleep on the sofa downstairs, and didn't wake up." Panicked, Goodier said she eventually shook her daughter awake, but as she regained consciousness, Beth started babbling incoherently, as if she were a child again.

Beth was taken to the hospital, where she remained for the first several months on and off, until a neurologist recognized the symptoms and diagnosed her with KLS. Although seven years have passed since her diagnosis, "It's never nice. My heart always sinks, but it is what it is. We have to get on and cope with it," her mom said.

Goodier explained when Beth is awake, anywhere between two and six hours a day, her 22-year-old daughter reverts back to her 5-year-old self when she is "asleep." Beth is often confused and frustrated by the world around her. She often asks, "Am I dead, mummy?" and speaks in a child-like voice.

When Beth wakes up, she has no recollection of the episode. Her mom spends the first few moments catching her up on major events. She has compared it to losing portions of her life.

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"She doesn't remember her 17th year at all, and she probably won't remember much of this year either," Goodier said. Beth is currently "asleep," and has been for the last two and a half months.

While Goodier has since started recognizing signs that her daughter will fall into another episode, including exhaustion and a poor mood, the time frame for each episode tends to be unpredictable. They can last as long as several months, or as short as a little over a week, while her good days can range from a few weeks, to just a few days.

But when she's "awake," she likes exercising to offset the binge eating during her episodes, and putting together video blogs to give viewers a glimpse into her world.

"I wanted to show people what my life was like," Beth said in one of her vlogs, which discuss topics from mental breakdowns to sweet moments with her boyfriend, Dan.

Beth and Dan, 25, met three years ago, and he has been patient with her illness ever since they got together.However, her mom said she often thinks about the rest of her life that she has missed out on. She stopped attending school soon after her diagnosis, and is unable to work because of her unpredictable schedule.

Related: Oddest sleep disorders

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Oddest things people do in their sleep

Sleep eating

Nocturnal sleep-related eating disorder is characterized by people sleep walking to their kitchens and eating. Often times, they have no recollection of it, and only realize when they discover messes and missing food.

Sometimes, the patient has severe weight gain and other health issues attributed to the disorder. 

Frequently, the foods eaten are high in fat, sugar and carbohydrates. Furthermore, people with the disorder create bizarre food combinations with the items they have access to in their kitchen. 

Acting out their dreams

REM sleep behavior disorder physically play out their dreams, moving their bodies or even getting out of bed.

Their dreams are so vivid and real, that during REM sleep, which normally restrains your muscles, your body still flails. 

Hallucinations 

It is possible to experience auditory, visual, tactile and olfactory hallucinations, as many times, the person cannot tell what is part of a dream and what is part of reality. 

The hallucinations often happen in the stages right before sleep (hypnogogic) or after sleep (hypnopompic). Hypnogogic can be associated with sleep paralysis and a fearful sensation. 

Hypnopompic is usually associated with dreams and 'feeling a presence in the room'. 

Sleep sex

Called 'sexsomnia', it falls under the category of parasomnia, the stage right before you fall asleep.

When a person has this disorder, they oftentimes engage in sexual acts with a partner or themselves, while asleep. They have no recollection of it. 

It is more common for people who normally are affected by other sleep disorders, or those taking sleep medications.

Sleep texting

Apparently, more and more people are sending texts in their sleep. 

"It is very common for people to do things in their sleep that they do repeatedly during the day," said a neurologist in an article to BBC. 

Understandably, the texts make little sense to the person after they've woken up. 

Exploding head syndrome 

It occurs when you're about to drift off into sleep, and suddenly a loud noise goes off in your head. 

Another parasomnia event, exploding head syndrome sounds similar to a clap of thunder or bomb. However, it sounds as if the noise could be heard by everyone, but in reality, it's internal.

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"Maintaining friendships is very difficult as well," her mom explained. "They forget about her. They're all going off to [college] and it's difficult. She should be the one doing it but she can't."

Read: Husband Desperately Searches for Missing Wife Suffering Early Onset Alzheimer's: 'I Don't Know How Close to Sanity I Am'

According to doctors, people often get KLS in their youth years, and grow out of it in an average of 13 years. But because the disease is so rare, most people go several years before they are diagnosed.

Goodier added that doctors expect Beth to take longer to grow out of it since her episodes are so severe.

"My heart goes out to everyone with KLS, especially my daughter," Goodier told InsideEdition.com. "I'm very proud of her."

Watch: 4-Year-Old With Rare Condition Doesn't Know He Looks Like an Old Man: 'People Stare at Him'

More from Inside Edition:
Read: Meet the 5-Year-Old Boy Whose Rare Condition Causes Skin to Grow 10 Times Faster Than Normal
4-Year-Old With Rare Condition Doesn't Know He Looks Like an Old Man: 'People Stare at Him'
Husband Desperately Searches for Missing Wife Suffering Early Onset Alzheimer's: 'I Don't Know How Close to Sanity I Am'

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