Mom uses social media to raise awareness for her condition

Surprise for Woman with Lymphedema
Surprise for Woman with Lymphedema

It's undeniable that pregnancy changes women's bodies, but some are affected in different ways than others. Sarah Buller, a former model from Australia, underwent changes while carrying her first child -- and she says her body hasn't been the same since.

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Buller suffers from Primary Lymphedema, which causes one of her legs to swell to twice the size of the other. According to her blog, this began in 2013 when she was three months pregnant. Initially, she thought it was routine swelling that happened during pregnancy. Within a few weeks, though, she realized it was different.

She went to the doctor and underwent tests to see what the swelling was. While her doctors said it would go away when she gave birth, it didn't. Several months later, she was diagnosed -- and her doctor told her that her leg would be like this the rest of her life.

At first, Buller was in denial. "I really didn't understand what Lymphedema was and was pretty inconsistent with wearing my compression stockings because I genuinely believed that it would just go away one day," she said. She realized after her second pregnancy in 2015, however, that it was not going away.

PHOTOS: See Sarah Buller and her Instagram account

Buller tried to control the swelling every day by wearing compression clothes, elevating her leg and taking supplements -- but not only was all of that not helping, it was seemingly making it worse. Feeling isolated and worried, she searched "#lymphedema" on Instagram where she found an entire online community of people like her.

Through Instagram, she found out about surgery. She founded her blog The Lymphosaurus Rex and Instagram account not only to document her surgery experience, but to spread the word. "We are not circus freaks and Lymphedema is not a joke," she wrote in a blog post.

She continued, "Nor is it a life sentence. Thanks to advances in technology, we now have three surgical procedures that exist to treat our Lymphedema."

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