Child born with his brain growing up and out of his skull is continuing to defy all odds
Doctors told Dustin and Sierra Yoder that their son, Bentley, would be "'incompatible with life." The boy was born with a rare condition called encephalocele which caused his skull to form incorrectly, forcing part of his brain to grow up and out of his skull.
The Yoders expected to bury tiny Bentley shortly after his birth; he was given a grim chance of survival.
But boy, were they wrong.
When he was 7 months old, Bentley underwent surgery under the care of Dr. John Meara.
From STAT News:
"Meara developed a plan to slice Bentley's skull in several places and spread it out like a flower to make more room. To close the encephalocele, he planned to take two segments of skull from elsewhere and criss-cross them at the top of the baby's head."
Meara tested the idea with 3-D printed brain image scans.
The surgery and additional follow-up surgeries have been successful, and Bentley's parents are determined to help make his life as normal as possible. He is expected to have developmental delays.
"He is different, but we're going to try to make it as un-different as possible," said Sierra. The couple has one other son, Beau, who is 3 years old.
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