What it's really like to live with lupus, as told in 14 harrowing confessions
Several people with lupus took to Whisper, the popular app that provides an anonymous platform for people to share their most honest thoughts, to explain what it's really like to suffer from the disease.
1. Nothing makes you feel as capable as knowing how much worse you could be feeling:
2. Half the battle might be putting on a smile when you really want to cry:
3. It might be depressing to think that your disease is holding you back from dreams you might have otherwise accomplished:
4. Knowing your body is extremely important, but it may come at the risk of putting out people you care for:
5. The most common age range to be diagnosed with lupus is 15-44:
6. You might feel like you have to hide your pain to keep the people you love in good spirits:
7. Little things, like 24 hours without pain, might feel like big dreams to someone with lupus:
8. Feeling like people are immediately threatened by something you suffer from might feel offensive:
9. Suffering from a debilitating disease might make you feel like you're unworthy, but that's not true:
10. You should never have to explain or defend your disease, especially to people who refuse to believe you:
11. People with lupus might miss out on some of the most basic joys people find in life:
12. It's nearly impossible not to fear for the future when you suffer from an autoimmune disease:
13. The alternatives to chronic pain aren't always ideal, either:
14. You don't need anyone's approval to ensure that what you feel is true or valid:
Want more from people with lupus? Check out Whisper!
In case you'd like to hear more on what it's like to live with the autoimmune disease:
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