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Rare Disease Makes Scalp Look Like Brain
A man in Brazil has a rare medical condition that makes the skin on his scalp wrinkle into folds that resemble the wrinkles of a brain. He started d...
October 22, 2012
Fears Over Funding For Rare Diseases
Patients who suffer from rare diseases could be denied access to high-cost drug treatments in the future because of changes to NHS funding in England,...
September 03, 2013
Big Pharma Competes In Rare Diseases Treat...
Rare diseases were once the neglected stepchild of drug makers, but today conditions afflicting even very small numbers are seeing record interest fro...
January 31, 2013
3 Kids From Same City Battle Rare Kawasaki...
Certified phlebotomists and coworkers, Dana Aleman and Leticia DeGracia, both had children diagnosed with a rare disease that causes inflammation of t...
October 14, 2013
Annual Convention For Rare FOP Disease
INSIDE EDITION was at the annual convention for FOP, a rare diseases that makes people's bodies turn rock solid, where we heard from people who face e...
November 15, 2013
Elementary School Rallies Around Toddler W...
The school of two sisters has decided to fundraise for their 2-year-old brother Benjamin, who is fighting Central Nuclear Myopathy.
December 11, 2013
Female Cyclist Raises Awarness of Her Rare...
A young Texas woman with a rare disease is working to bring attention to a rare neuromuscular disease with a bike ride despite losing her ability to w...
April 03, 2013
Teen With Rare Disease Returns Home Thanks...
A viral video made by a New Hampshire man prompted several doctors from across the country to come up with a treatment plan for his nephew, who had a ...
May 09, 2013
Rare Disease Can’t Stop This Inspirational...
When DePaul University student Colleen Smith was diagnosed with an immune system-attacking disease, Wegener’s Granulomatosis, it didn’t stop her from ...
November 21, 2013
Excessive Tea Causes Rare Bone Disease
A Detroit woman has been diagnosed with an extremely rare bone disease, believed to be skeletal fluorosis. The woman drank a pitcher of tea everyday ...
March 24, 2013
Teen Football Player Gets Rare Disease Whi...
16-year-old Nigel Schonfeld of Shelbyville is currently being treated for Paroxysmal Nocturnal Hemoglobinuria (PNH). The community is helping raise mo...
November 05, 2013
Rare Skin Disease Prevents Boy from Huggin...
A Minnesota boy has a rare disease that inhibits his skin from attaching to his body. Now, with the help of doctors, he can do things he never could b...
March 17, 2013
Single Mother Home From War Struggle To Make...
John Mayer and Katy Perry Won't Speak to Eac...
Heidi Klum Says She's Fine With Just Four Kids
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