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Potter's syndrome survivor celebrates incredible milestone

Potter's Syndrome Survivor Celebrates Incredible Milestone

The daughter of a congresswoman wasn't even expected to survive birth, and now she's made it past her first birthday -- despite living with a typically fatal condition known as Potter's syndrome.

It's all thanks to an experimental treatment. Mom, dad and baby girl sat down with Fox News Monday:

"They told us that with 100 percent certainty, she would not survive," Abigails mother said.

"One of her doctors said she's a very healthy baby who just happens to not have kidneys," the father added.

The National Institutes of Health explains Potter's syndrome is a rare condition that involves a baby's kidneys failing while in the womb. When the kidneys fail, vital amniotic fluids are no longer able to help with lung development.

Abigail Beutler's mom, Washington state Congresswoman Jaime Herrera Beutler, made headlines last summer when she beat the odds and gave birth to her baby girl. Outlets, including NBC, said Abigail was the first baby to survive the condition.

"She is like any other baby. She has a few challenges, but, man, she's determined," the mother said.

So how did Abigail survive? KPTV reports a doctor tried an experimental treatment and injected saline solution into the baby's lungs for five weeks before she was born to try to develop her lungs.

Herrera Beutler says that her daughter's lungs grew as the treatment went on, leading to her successful birth.

House Speaker John Boehner introduced both little Abigail and the doctor credited with saving her life on the house floor last week -- just days after Abigail celebrated her first birthday, reports C-SPAN.

Abigail is on dialysis every night because she doesn't have kidneys. Her dad says that she'll likely have a kidney transplant when she's older.

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Join the discussion

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jvt1984 July 29 2014 at 8:31 AM

The baby is beautiful. I know it is hard, but hang in there.

Flag Reply +10 rate up
r_porterfield July 29 2014 at 9:42 AM

Very happy for this little girl. I had a daughter that wasn't to live more than a week. It's so hard going through that. Now she's seven and healthy and happy and very bright! It's amazing to see her this way when the doctors were certain she would die. Just so grateful.

Flag Reply +9 rate up
1 reply
gramargo r_porterfield July 29 2014 at 9:56 PM

So good to hear your daughter is doing so well. Daughters are very special, aren't they?

Flag Reply 0 rate up
jerry July 29 2014 at 8:22 AM

Thank God for this chold's survival.

Flag Reply +5 rate up
1 reply
nabwolf jerry July 29 2014 at 1:33 PM

It is not God, but great health care!

Flag Reply 0 rate up
1 reply
PowellTreeCare nabwolf July 29 2014 at 2:42 PM

And yet, you left a nasty comment about this child in connection with healthcare, didn't you, nabwolf?

Flag 0 rate up
Hello, Mary July 29 2014 at 9:57 AM

Old medicines were once experimental. TRY EVERYTHING!!!! And drug companies and insurances should cover them - it's life!

Flag Reply +5 rate up
1 reply
d1anaw Hello, Mary July 29 2014 at 4:52 PM

But they don't. That's the problem. Those with connections have the access, but the rest do not.

Flag Reply 0 rate up
mike July 29 2014 at 12:00 PM

You go little girl we are all rooting for you here.

Flag Reply +4 rate up
flagwaver2 July 29 2014 at 8:34 AM

Such a sweetie

Flag Reply +3 rate up
pjarizona July 29 2014 at 3:15 PM

What a blessing. She is so cute..

Flag Reply +2 rate up
coatoam July 29 2014 at 4:00 PM

This child's best chance for continued survival is that her Congresswoman mother is exempt from ObamaCare. These types of procedures will be cost prohibitive under ACA.

Flag Reply +2 rate up
1 reply
gramargo coatoam July 29 2014 at 9:57 PM

What gives you that idea? This was a pre-existing condition, I'd say.

Flag Reply +1 rate up
Jean Karpinski July 29 2014 at 4:40 PM


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1 reply
CAMERON Jean Karpinski July 29 2014 at 8:56 PM


Flag Reply 0 rate up
Annika July 30 2014 at 12:02 AM

Good thing her mother can actually afford that sort of treatment. I doubt that baby would live if she had been on welfare.

Flag Reply +1 rate up
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