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Family begs drug company for medicine to save 7-year-old's life

Family Begs Drug Company for Medicine to Save 7-Year-Old's Life
Josh Hardy, 7, has beaten cancer four times in his short life, but after all that he's now struggling to get the medication he needs to stay alive.

'The drug he needs to survive a very curable virus is being denied because the manufacturer says it can't afford to give him the drug,' Fox & Friends reports.



Josh developed an infection called adenovirus while recovering from a bone marrow transplant. His mother Aimee Hardy wrote on his CaringBridge blog:

'Normally, Josh's immune system would be able to handle [the] adenovirus if his immune system was set free. The challenge is his immune system can't be set free yet because his body is still trying to adapt to the new bone marrow cells. So to keep the body from killing the new cells, they have to suppress the immune system, thus creating ideal conditions for adenovirus to advance. Catch 22.'


WTTG has more on the fight to get Josh the medication he needs from drug company Chimerix.

'Josh's doctor says there's a drug in the trial phase that could save his life, but the company won't provide it.'

'How would we say no to the dozens, hundreds and potentially thousands of other requests we'd get for this drug?'

Chimerix says it originally made the drug available for compassionate use. However, due to high demand, the company could not supply enough, so it had to stop releasing it two years ago. Chimerix says it's waiting for the FDA to approve the drug before selling it.

Josh's grandmother spoke to WRC-TV about her family's desperate attempt to save Josh.

'I just, I just plea with the drug company to release this drug to save Josh's life.'

The family has started a social media campaign with the hashtag #SaveJosh in hopes the attention will persuade Chimerix to release the drug.

Join the discussion

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Debby March 12 2014 at 8:54 AM

For those of you who have been following the story of St. Jude patient Josh Hardy, we are pleased to confirm that Chimerix has notified us that it will send brincidofovir to St. Jude within the next 48 hours so that the drug can be used to treat Josh's adenovirus.

This was posted on St. Jude Children's Hospital Facebook page 12 hours ago.

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2 replies
kubi490 Debby March 12 2014 at 8:58 AM

thank you for that info, debby

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Donna Debby March 12 2014 at 9:04 AM

Great news!

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dewlady357 March 12 2014 at 9:53 AM

Alright folks..this isn't political. It's practical. The FDA is NOT going to release a new medication for the public until they can prove it is safe. Remember when the FDA approved Thylidomide (not sure I spelled that right) and some children were born with horrible disfiguring problems as a direct result of their moms taking it while pregnant? That is just ONE case of the FDA approving something that ended up being a very bad drug. They are covering their butts on this one. Of course all the parents want is for their child to live. Perfectly understandable. But say MY young child had this problem and I heard about the "miracle drug" and demanded it be given to him or her regardless if the FDA had ok'd it or not. I'd fight like hell to get it. Any parent would (hopefully). But people have to understand that this has NOT been declared a safe drug. I'm almost sure this media sharkfeed will undoubtably get this particular child the meds being asked for. Media can put pressure and other bullcrap on anything, and often does. However, say that he gets the meds and in 20 years any child born to him and his wife has a disfiguring problem. What then? Sue the FDA, of course..anyone want to bet the farm on this one? Again, this is NOT Obamas fault, though only God knows how many OTHER things ARE his fault. Come on FDA, prove the med is ok or NOT ok and do it quickly. Then put it on the market or not. Actually, its all in your hands. Get on it!

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1 reply
flynbrick dewlady357 March 12 2014 at 10:01 AM

"Remember when the FDA approved Thylidomide (not sure I spelled that right) and some children were born with horrible disfiguring problems as a direct result of their moms taking it while pregnant? That is just ONE case of the FDA approving something that ended up being a very bad drug."

Actually, the FDA did not approve Thylidomide, however it was approved in Europe. The FDA saved many children from the drug's effect.

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sixtysomething55 March 12 2014 at 9:59 AM

Good Grief.......we have lowered ourselves to where life means nothing. Drug companies and the FDA need a shake up, like one of their own get saddled with something like what this kid is facing. I'm sure SUDDENLY there would be a change in this barbaric approach to research and medicines.

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karen March 12 2014 at 8:06 AM

When is AOL going to block the stupid and UNTRUE commercials on these sites??!!

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1 reply
pappy303 karen March 12 2014 at 8:30 AM

WHEN YOUR DUMB ASS QUITS COMMENTING,

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rjones8656 March 12 2014 at 10:01 AM

release the drug!!

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Stacey March 12 2014 at 10:07 AM

They are releasing the drug. St. Jude posted this morning that he is getting the medicine.

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1 reply
JHoff2nd Stacey March 12 2014 at 10:16 AM

Stacey,

I must have been typing my first reply as you were posting yours. Quite a considence, huh

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Brian March 12 2014 at 8:03 AM

Seems there are two issues here. FDA approval or a drug company who can't afford to give it away. Which is true. If it is a cost factor, where is the Affortable Care Act, that promises to help all.

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1 reply
karen Brian March 12 2014 at 8:12 AM

This is always a problem. In the 80's when AIDs was first discovered and drug companies were all rushing to develop an AIDs drug, they were besieged by AIDs patients begging for drugs that were in the first stages of development (some still being tested in animals, and some just making it into a small and select group of human beings). It was heartbreaking, but unethical to release a chemical for which so little was known. When drugs are being developed, small quantities are produced, just enough for testing…full scale manufacturing is not done until it's known the drug works, is safe and gets FDA approval. This is a sad situation, but occurs often. BTW…the drug the AIDs patients were begging for never made it beyond the first few human beings….it didn't work at all and the safety of the drug in humans was never established.

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JHoff2nd March 12 2014 at 10:13 AM

I understand business-you just can't give it away!! I also understand compassion, do unto others as you would have them do unto you, and love your neighbor as you love yourself.

Let's pray for Josh to recover and leave it up to God to decide if the drug is necessary. If God decides it is necessary He will make it available.

Blessings to Josh and his family.

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Denise March 12 2014 at 8:00 AM

Looking into the eyes of this precious boy should be enough for those in charge to release this medication to give him a chance at life. This could be their child and if so, perhaps a different stance. Please give him a chance. It is obvious he has fought hard already.

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Victorian Farms March 12 2014 at 10:13 AM

For Gods sake..... PLEASE. THANK YOU Chimerix! I have a feeling you did it out of corporate survival instead of compassion. But I still Thank You for giving this boy a chance........

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